"I had a colonic, rectovaginal, and ovarian endometriosis, adenomyosis, fallopian adhesion, together with ileocolostomy and 2 times of laparotomy.
My body survived them all.
Now it's my soul's turn to survive also.
Though what's ahead remains unknown
I'd like to keep a hope alive..."
Showing posts with label Treatment. Show all posts
Showing posts with label Treatment. Show all posts

Friday, June 12, 2009

Mission Baby: Start!

Exactly 3 months after 2nd surgery. I've had 3 periods (1st painful - 2nd no pain - 3rd a very mild pain), and 3 meetings with the doc. So far so good. Painful period has become and hopefully will forever be history.

Now I'm ready for the main program; a fertility mission. Honestly we've never been seriously trying to make me conceive - I got sick immediately after honeymoon, remember? However, with my disease, we need this program to not waste anymore time. Hurry before it comes back... Find out and treat any other obstacles which might exist as soon as possible.

Pentoxyfilin has been dropped. There are only 2 names listed on this month presciption; Naturol 400iu 2x1 and folic acid 1x1.

The next thing I need to do is HSG (hysterosalpingogram) on the 9th day of my cycle.... so it's still days from now since my next period is expected to come on around June 22. This is an X-ray test to see whether or not I have tubal blockage. And of course, as part of the program, my hubby will have to have a sperm analysis... something which I'm still wondering how the procedure will be like more than my HSG... (^_^)p

So now I'm anxious with the results even long before they're taken... My mind is fully loaded with what ifs.

Scares me like hell, but I have to move on and have no other choice. The road has been taken, where both the length and the end are still mystery... Mission baby has just started... Wish me luck, everyone! (^_~)

Read on >>

Thursday, May 14, 2009

2 Months After 2nd Surgery - Nice

I've finally decided to stick to my doc, and switch clinic when I have to. Hermina is surely more expensive than Klinik Yasmin, but I can still handle it. My doc did the op, he fully understands my condition, and so far he's done a great job handling my case... so what would I expect more of a doc? (With a little advice from dr. F, thanks doc! :D )

So yesterday I went to RS Hermina mom-&-children hospital. Nice cozy place, indeed.

The bill includes hot coffee/tea and snacks (fried ones, at that time)... but I personally don't think it's a good idea to serve those kinds of food to women with endo (orange/apple juice would be way better :P), so yeah, I didn't take any. Comfortable couch, large flat tv, clean toilet... Okay, so now I can sleep nicer while waiting... (^_^)

Arrived at 2.30 pm, I was number 3. Hmm... so here dr. A's got quite a lot of patients... coz when I called earlier that day, there were
already 22 people booked . But of course, first come first serve. No. 3's fine. Only in half an hour, those lovely couches were fully occupied... wow!

After a little of sleep (I think I always fall asleep while waiting for anything :P), it was the moment of truth. My heart's pounding... Am I okay? Am I okay?

After some interviews, a VT, USG... it was then declared that I was so far so good...! My vagina and cervic (where I had rectovaginal endo and adhenomyosis), uterus, both ovaries... looked as good as it should... I was sooo relieved.

I was prescribed another 400mg pentoxyfilline per day. I wasn't given any hormonal drugs, but some vitamins instead... folic acid and Naturol 400iu. It's going to be for one month before my next visit.

Only God knows how I feel every time I have to go see him.

Anxious.

I think that's why I always appeared pale each time I walked in to his room. Pale, cold, ducked. But as soon as he looked at me in a very happy face, I'd started to feel warmer and calmer... it's all good then.

A doc's mood will be immediately transferred to the patient. I remember as clear as a glass his expression when I was about to be operated. Even when he didn't say a thing, I knew that the risk was high, the hope was little... not that I wouldn't survive or sort, but whether or not he could recondition my reproduction organ in order for me to live like a normal woman.

So when his eyes are brighter than the afternoon sky, then I'll know that I am just fine... That hope is still alive...

Read on >>

Tuesday, May 12, 2009

In The Search For Endocrinologist

Finding a good endocrinologist was not an easy task. Thanks to a digestive surgeon to whom I went in order to have ileocolostomy closure advice, I then found this doc.

I'm pretty pleased with him. I mean, after a series of horrible residents (yeah, on the second thought... why did I even ever bother to go see residents for such illness? hurt me a lot how they treated me) and one gynecologist - who failed to recognize my endo - dr. A quickly discovered my rectovaginal endo and decided a treatment.

I should have scheduled a meeting with him, yet he's too busy for a doc and to make it harder, he now seems to rarely come to the clinic I used to go to - Yasmin. The closest schedule in Yasmin will be this Saturday, which sounds not very promising. The closest to another clinic - Hermina - will be tomorrow.

So now, I'm so confused of what to do next. Should I stick with him, thus go to another clinic... which I suspect a little more expensive than the previous one...? Or, should I just go to Yasmin, and switch doctor?

I need a continuity. And on the top of it, I need to trust a doc. So sticking with my endocrinologist is my first option. But, if he's so hard to go see, maybe I should consider another...

@.@

Read on >>

Friday, May 1, 2009

1st Period After Operation #2

A week after I was back home, I went to meet my endocrinologist. He examined the area he had operated, and he said it was so far so good. He prescribed me with pentoxifylline for 1 month. He told me to come again in one month to see what will happen.

I had my 1st period after the second surgery on April 7. As I've mentioned in the post about my symptoms, I've been free from period pain for about 3 months. So I was shocked that in this period, I felt so much pain.

That was the kind of pain I've never felt before.

It was on the left and right side of my lower abdomen. A heavy pain, really. Constantly in the 1st day. Heavy bleeding in the 1st and 2nd day. Less in the 3rd day.

The 4th day, yet another pain and heavy bleeding. The pain was lessen, though.

Then stopped.

Maybe the heavy bleeding was caused by the drug I was taking. After a little reading, pentoxifylline was meant to be so. But how about the pain?

Tomorrow I'm going to the clinic. And I'm so scared...

Update: The meeting has been canceled, scheduled on next Saturday :(

Read on >>

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