"I had a colonic, rectovaginal, and ovarian endometriosis, adenomyosis, fallopian adhesion, together with ileocolostomy and 2 times of laparotomy.
My body survived them all.
Now it's my soul's turn to survive also.
Though what's ahead remains unknown
I'd like to keep a hope alive..."
Showing posts with label Symptoms. Show all posts
Showing posts with label Symptoms. Show all posts

Saturday, December 25, 2010

To move on is..

OMG! It's been sooo long since my last post! Like I've said before, my story has come to the part where I have to tell you about ileocolostomy, which was the worst moment of all. I find myself just can't do it.. I still can't put myself to memorize those moments again and write about it.

For a little update, I'm still not pregnant yet. As the side effect of 2 times laparotomy, my fallopian tubes are blocked - both of them, yes. So.. it's pretty much a dead end for me. Unless I'm up for a laparoscopy to fix the blockage or IVF.. whichever I choose, I don't have the money for now.

To make matter worse, I suspect that the endo is back. These past 3 periods, I feel secondary dysmenorrhea - a sore right waist - from day 2 to about day 14 or even almost day 20! So I've only got apprx. one week pain-free.

How do I deal with this? I literally don't know. Just live a day.. Or maybe, I'm running away.. I don't know.. Completely clueless..

But I'm still here in blogosphere, I'm quite active in my other blog Living Daisy, in case you want to have a little chat about endometriosis.. Until then, stay healthy ;)

Read on >>

Friday, May 1, 2009

1st Period After Operation #2

A week after I was back home, I went to meet my endocrinologist. He examined the area he had operated, and he said it was so far so good. He prescribed me with pentoxifylline for 1 month. He told me to come again in one month to see what will happen.

I had my 1st period after the second surgery on April 7. As I've mentioned in the post about my symptoms, I've been free from period pain for about 3 months. So I was shocked that in this period, I felt so much pain.

That was the kind of pain I've never felt before.

It was on the left and right side of my lower abdomen. A heavy pain, really. Constantly in the 1st day. Heavy bleeding in the 1st and 2nd day. Less in the 3rd day.

The 4th day, yet another pain and heavy bleeding. The pain was lessen, though.

Then stopped.

Maybe the heavy bleeding was caused by the drug I was taking. After a little reading, pentoxifylline was meant to be so. But how about the pain?

Tomorrow I'm going to the clinic. And I'm so scared...

Update: The meeting has been canceled, scheduled on next Saturday :(

Read on >>

Monday, April 27, 2009

My [Confusing] Endo Symptoms

My period symptoms regarding colon/saecum and rectovaginal endo are rather different from the common endometriosis symptoms. Some doctors even neglected what I was trying to say about my own symptoms, thus I even found a doctor who refused to accept that I had endometriosis even after a pathological analysis just because I didn't have that sort of common symptoms. Yeah, some doctors are just that close-minded.

But recently I found out that my symptoms actually match to what is called gastrointestinal endometriosis symptoms, which I have jotted down in my previous post. It's just that this type of endo is quite rare (I don't know in what circumstances it's called rare, I just repeated what a doctor told me, I've never done any research or found any statistic), thus not many doctors have knowledge about it.

I've tried to recall my memories to list all symptoms I had and am having during menstruation. Here's my list:

1. Early periods:
I had my first menstruation at about 12 years old. In my early periods, in the first year, I had heavy crams and pain in the pelvic. I even fainted in the first 2 or 3 periods. I didn't take pain-killer medicine often. It got lessened through times, though. After the first year, although I can still feel the pain in the first 2 or 3 days, I could still do daily activities... although lying down in bed was always the best... (^_^)p

2. At my 20s:
Then at some point, I think it was when I was in college, the symptoms changed. I felt pain in my upper belly, located 2 fingers above belly button. It felt exactly the same like when you are having a gastric pain.
It only occurred in the first 2-3 days of my period. It didn't go away with any usual pills for gastric pain.

3. The last a couple of years, before Operation #1:
My abdominal pain got worse and worse. Together with heavy gas and bloating, nausea, vomit, low back pain, funny feeling in my rectum (it feels as though you want to go to the toilet to defecate), and fatigue.
They all came together during the first 2 days of my period. The 1st day is worse.
I even often took a day-off from work (The company I was working at has a regulation to let women taking a day off in their 1st day of their period. I was very thankful for that, though it might have made me least popular by taking a day off every month).
Come to really think of it, I think I also had diarrhea and constipation every once and awhile.

4. The last period right before Operation #1:
My abdominal pain didn't disappear even after my period was over. It stayed, got worse. I could not defecate, and I think I could not release gas either.
My stomach was getting bigger and bigger as all defecation and gases were stuck there.
I had a colon obstruction... then I was put into Operation #1.

5. After Operation #1:
October 2008: My abdominal pain, heavy gas and bloating disappeared. But I still felt a low back pain, heavy nausea, and vomit. And there I felt a slightly pelvic pain.
November 2008: The pelvic pain and vomit were gone. Low back pain and nausea remained.
December 2009: Nausea was gone. A slight low back pain.
January-February-March 2009: No symptoms at all. For the first time ever in my life, I was completely free of pain. It felt as though I didn't have a period. I felt so light as a feather.

But did it mean I was free from endo? No.
Because during those months, there were one symptom remained; funny feeling in my rectum. In Feb and March, I had rectal bleeding in the range of few hours before menstruation.

And even though I was completely free of pelvic pain or any kind of pain whatsoever, it was in these moments, an ovarian endo cyst emerged...

Read on >>

The Common & Not-So-Common Endo Symptoms

The most popular symptom of endometriosis is pelvic pain. The doctors I've met, they relied on this one particular symptom alone to determine whether I had endometriosis or not... which most of them ended up with the word "no" when I said I don't have this symptom at the moment. The fact is, there are quite many symptoms related to endometriosis. And what makes it even more complicated is that each woman may have different symptoms, some women even don't have any symptoms at all.

From some reliable sources, I'd like to list down some common and not-so common endo symptoms. They are:


1. The most common symptoms:
- Acute pelvic pain
- Pain before and during menstruation
- Painful intercourse
- Lower back pain
- Heavy and/or irregular menstruation
- Difficulty conceiving (infertility)
- Irregular bowel movements (diarrhea or constipation)
- Irregular vaginal or uterine bleeding
- Fatigue

2. Gastrointestinal endometriosis symptoms:
- Rectal bleeding during menstruation
- Rectal pain
- Increased gas and bloating
- Vomiting
- Nausea
- Abdominal cramping
- Diarrhea
- Constipation
- Tailbone pain

3. Other symptoms for other endo location:
- Urinary tract endo: blood in urine, painful or burning urination, tenderness around the kidneys, urinary frequency, retention or urgency.
- Lung and chest endo: coughing up of blood during mentruation, accumulation of air or gas in the chest cavity, constricting chest pain and/or shoulder pain, collection of blood and/or pulmonary nodule in chest cavity (revealed under testing), shortness of breath.

As you can now see, most people (and doctors) are familiar with Symptoms No. 1 which are directly related to reproductive organs where endo cyst can usually be found. But endo can infiltrate deeper than just reproductive organs therefore the symptoms may differ a bit. Some symptoms can be misled into other illnesses or only can be proven after a surgery for other reason (that is exactly my case here).

And that is how this endo thing becomes a tricky sneaky ghost...

:: Sources, for deeper analysis:
- http://www.endo-resolved.com/
- http://endofound.org/

Read on >>

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